Scientific and Patient Information Manager

• Location: Home-based/Remote but must be based in the UK, Germany, France or Spain
• Please, send your CV and cover letter by Sunday, 2 November 2025 via email at our recruitment email address. Applications without a cover letter will be rejected.

As Scientific and Patient Information Manager, you will work in the Medical Education and Scientific Engagement Team at Myeloma Patients Europe (MPE). Under the Department Head and MPE Leadership Team, collaborating with the Head of Communications, you will oversee the following projects and activities:

Patient information and communications management (Approx. 55%)

A key role of MPE is providing up-to-date, comprehensive, and patient friendly educational materials and tools for our members and the patient community, as well as communicating about scientific advances in myeloma and AL amyloidosis. This role will be responsible for working across MPE to develop a patient information and educational plan and develop and deliver resources. MPE expects the appointed person to:

• Perform efficient scientific watch (monitoring advancements in research and clinical development)
• Lead the development and implementation of a patient information plan based on member and patient needs, scientific advances and cross-department projects
• Monitor the readership and usage of MPE patient information materials, incorporating website user analytics and feedback from users to increase the reach and impact of the department
• Research, write, and develop patient information and educational materials (including factsheets, Q&As, webinars and infographics). Manage the execution of materials from development through to publication in coordination with Department Head, other MPE departments, and external stakeholders (key opinion leaders, industry, researchers, proofreaders etc.)
• Work with the MPE Communications Team to develop website news stories, e-Newsletter and social media content related to clinical and scientific updates. This will include planning new and innovative ways of disseminating scientific and medical information to patients
• Attending (in person and/or virtually) scientific congresses and developing conference and scientific meeting summaries, organising post-conference webinars for patients in collaboration with the Communication Team

European Myeloma and AL Amyloidosis Clinical Trial Navigator Management (Approximately 35%)

MPE has developed an online clinical trial search tool of European myeloma and AL amyloidosis clinical trials for patients and advocates. This role will be responsible for the management, improvement, and promotion of this core MPE programme, with a focus on ensuring the tool and content is patient friendly, including:

• Maintain up-to-date and accurate database of all industry and academic recruiting myeloma, AL amyloidosis, MGUS, and smouldering myeloma clinical trials in Europe
• Write and format lay / patient friendly clinical trial descriptions for the Navigator website
• Liaise with industry and academic clinical trial sponsors, clinical trial sites, and other stakeholders to maintain database up-to-date
• Liaise with web developers to manage the Navigator website, make enhancements, and fix technical issues
• Oversee implementation of translated materials in multiple languages
• Elicit feedback from patients, family members, clinicians and other stakeholders to ensure continued improvement and enhancements
• Manage website news and content

Other 10%

• Staff meetings, annual events, support the rest of the team with clinical and scientific information, answer inquiries from patients, carers and MPE members.

About you

Essential

• A Bachelor s or a Master s degree in a relevant scientific field
• Minimum of five years of relevant experience
• Demonstrable experience (and tested during the interview process) of writing and communicating scientific/complex information for lay audiences across different media
• Ability to understand, critically read and process complex scientific information (from clinical trials, scientific papers, conference talks etc) and communicating about this in lay, patient friendly language
• Excellent capacity for analysis and communicating (verbally and in writing) clearly for a range of different audiences
• Demonstrable project management experience
• Excellent level of both written and spoken English
• Excellent communication and presentation skills
• Ability to lead and work independently on assigned tasks and take appropriate initiatives
• Confidence in representing an organisation in meetings with external stakeholders at all levels
• Good networking abilities
• Rigorous work methods and high attention to detail
• Willingness to learn and curiosity
• Proficient in Microsoft Office (Word, Excel, PowerPoint, Outlook)

Desirable

• Knowledge of clinical development and how drugs are brought to market for patients
• Knowledge of myeloma and AL amyloidosis and/or immuno-oncology or other relevant field
• Experience of working in a non-profit organisation, particularly in a similar role
• Experience of working in European patient advocacy and/or with patients and their families
• Advanced degree (PhD) in a relevant topic
• Clinical or scientific research experience

What we offer:

• A permanent position with flexible hours in a remote setting
• An exciting position in a European non-profit organisation in the emerging fields of patient-centred healthcare and patient advocacy, working together with key patient advocacy leaders across Europe
• An opportunity to integrate in a dynamic and multi-cultural team working from different European cities

About MPE

Myeloma Patients Europe (MPE) is a pan-European organisation representing 50+ myeloma and amyloidosis patient groups from over 30+ European countries. It is registered as an international non-profit organisation under Belgian Law. A board mainly composed of patients and caregivers is elected by the membership to oversee the strategy and governance of the organisation. A team of 14 staff members runs remotely the day-to-day operations, programmes and services within 4 divisions: Access and Policy, Medical Education and Scientific Engagement, Capacity Building and Advocacy, and Patient Evidence.

MPE is dedicated to improving the treatment, care and quality of life of patients with myeloma and AL amyloidosis. To this end, the strategic goals of the organisation are:

• Drive improvements in access to timely diagnosis, optimal treatment and care
• Lead the development of robust patient research to improve experiences, outcomes and access for myeloma patients and their families
• Strengthen and empower MPE members to best support patients and enhance the impact of advocacy
• Amplify the influence and impact of MPE and its initiatives

Learn more about our programmes through our official page at mpeurope

The deadline for applications is Sunday, 2 November and all applications will be reviewed immediately afterwards. Our hiring team will schedule interviews with successful candidates to take place in the following weeks. We will be in touch following the review period regarding next steps.