Head of Fundraising and Marketing

About Cardiomyopathy UK

Cardiomyopathy UK is the only UK charity dedicated to supporting people affected by cardiomyopathy a disease of the heart muscle. We provide vital information, support services, and campaign for improved diagnosis and care. As we grow our reach and impact, we are expanding our fundraising and marketing capacity to secure sustainable income, diversify our supporter base, and build greater public awareness of cardiomyopathy.

The Role

We are seeking an ambitious and strategic Head of Fundraising and Marketing to lead the development and delivery of our fundraising and marketing strategy. Reporting to the CEO, the postholder will have overall responsibility for driving income growth, diversifying funding streams, and strengthening our brand and reach.

This role will manage a small team, responsible for individual giving, community and events fundraising, grant, legacy and trust income, and marketing. They will provide inspiring leadership, ensuring the team delivers sustainable income growth, meaningful supporter experiences, and increased awareness of Cardiomyopathy UK s work.

Key Responsibilities

1. Strategic Leadership and Alignment

• Develop and deliver a fundraising and marketing strategy aligned with Cardiomyopathy UK s mission and growth targets.
• Ensure fundraising activities reflect our values and strengthen our reputation for independence and integrity.
• Provide clear leadership to a team of five, setting objectives, monitoring performance, and supporting professional development.
• Act as a senior leader, contributing to organisational strategy and Board reporting.

2. Income Mix and Diversification

• Lead a balanced and diverse portfolio of income streams across individual giving, community fundraising, trusts and foundations, legacies, major donors, campaigns and events.
• Set clear targets and KPIs across each stream, with robust financial planning, forecasting, and monitoring.

3. Trusts, Foundations and Grants

• Identify priority funders and manage a strong pipeline of applications.
• Lead on developing compelling cases for support, securing new funding, and stewarding long-term relationships.

4. Individual Giving and Supporter Journeys

• Grow regular giving, one-off donations, and legacy pledges through tailored and innovative supporter experiences.
• Develop and optimise donor journeys to improve engagement, retention, and lifetime value.

5. Community and Events Fundraising

• Expand grassroots fundraising and challenge events, including the London Marathon, Berlin Marathon, and flagship CMUK events.
• Innovate supporter-led events and activities to broaden reach and participation.

6. Major Donors and High-Value Giving

• Build and maintain relationships with philanthropists and high-net-worth individuals.
• Develop a programme to secure transformational gifts and long-term strategic support.

7. Marketing, Brand and Awareness

• Lead brand and marketing activity to raise the profile of cardiomyopathy and Cardiomyopathy UK.
• Drive impactful digital marketing campaigns across web, email, paid and organic social, and digital partnerships.

Lead creative storytelling and content marketing to grow brand awareness and build a strong online community.

Innovate supporter journeys using data-driven insights, automation, and personalised communications.

Ensure brand consistency across all platforms and campaigns.

8. Monitoring, Evaluation and Sustainability

• Ensure all fundraising and marketing activity is ethical, sustainable, and compliant with regulatory standards.
• Lead on impact reporting and evaluation, demonstrating how income supports patients and families.
• Report regularly to the CEO and Board on progress, risks, and opportunities.

Person Specification

Essential:

• Significant experience in senior fundraising leadership, with proven success across multiple income streams.
• Strong knowledge of marketing, brand development, and digital engagement.
• Demonstrable ability to deliver income growth and diversify funding.
• Proven leadership experience managing multi-disciplinary teams.
• Track record of building strategic relationships with donors, funders, and partners.
• Strong financial and strategic planning skills, including KPIs and reporting.
• Excellent communication, influencing, and presentation skills.
• Commitment to the mission and values of Cardiomyopathy UK.

Desirable:

• Knowledge of pharmaceutical and healthcare sector fundraising.
• Experience with partnerships, ambassadors, or brand collaborations.
• Previous experience within the charity and/or health sector.