Haemoglobinopathy Network Lead Nurse

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Haemoglobinopathy Network Lead Nurse

The closing date is 17 March 2026

Lead Nurse - East Midlands Haemoglobinopathy Coordinating Centre

Based at Leicester Royal Infirmary with the role covering the East Midlands Haemoglobinopathy Network area

Band 8a

Full time 37.5hrs.

We are looking for a forward thinking individual who is willing to support the growth of patient services working to improve the patient experience, develop and support an education strategy and lead on creating and managing an effective nursing forum. You must have a proven track record of progressive leadership and development. In addition, be an effective role model, self-motivated with the passion and drive and adaptability to cope with continuously changing services.

Main duties of the job

The post holder will be responsible for supporting the strategic direction and planning of the specialty for Leicester, Nottingham and the surrounding areas included within the network geographical footprint.

You will be expected to attend regional and national meetings in order to work with other disciplines to future proof the service. This exciting opportunity has arisen to work alongside the network clinical and operational leads to provide strategic direction for nurses within the Haemoglobinopathy Coordinating Centre for the region based at UHL.

The teams care for individuals across the whole patient pathway from pre conception to adulthood. The post holder has responsibility to provide leadership, support and professional guidance in accordance with the haemoglobinopathy service specifications.

About us

Our new strategy, developed with the support and feedback of colleagues, patients, and partners, is our compass for the next seven years ().

We have four primary goals:

• high-quality care for all,
• being a great place to work,
• partnerships for impact,
• research and education excellence

And we will embed health equality in all we do - taking active steps to reduce the avoidable differences in healthcare that some people face, working in partnership with communities.

Our strategy is underpinned by new values and we will work to ensure they are an everyday reality for all:

• we are compassionate,
• we are proud,
• we are inclusive,
• we are one team

This is an exciting moment as we look to the future with clarity on what we already do well and where we need to focus our energies to make an even bigger difference for the people we serve.

About the University Hospitals of Leicester NHS Trust:

Job responsibilities

You must be compassionate and caring with good communication skills, as you will be required to teach and disseminate information in a wide variety of settings. Flexibility and being adaptable to your environment is also an advantage as there is a need to engage with hard to reach patient groups which will include working across a range of settings within the East Midlands Sickle Cell and Thalassaemia Network.

You must be self-motivated and able to work under your own initiative with the enthusiasm and passion to be part of a rapidly developing service.

You will need to be flexible and resilient in order to cope with the demands of the role. Good IT knowledge is essential as you will be required to work with the HCC manager and data manager to record outcomes and monitor against targets and give regular feedback to the rest of the team.

Person Specification Commitment to Trust Values and Behaviours

• Must be able to demonstrate behaviours consistent with the Trust's Values and Behaviours

Training & Qualifications

• Current NMC registration with no restrictions to practice
• Degree in nursing or health related subject
• Recognised Teaching and Assessing qualification and a Practice Assessor preparation day or equivalent
• Non-medical prescriber
• Speciality specific qualification
• Clinical Leadership Programme

Experience

• Evidence of innovation and achievements in Clinical Practice
• Demonstrates a high level of clinical expertise
• Demonstrates knowledge of clinical risk management
• Proven ability to develop multidisciplinary working
• Practical experience of leading and managing complex change / developing practice
• Experience of applying research, audit findings to deliver the clinical governance agenda
• Experience of user involvement in the planning / delivery of services
• Experience of managing resources
• Experience of Patient and Public Involvement in Service Delivery
• Wide range of experience in providing multi-disciplinary education within the specialist field (S)
• Awareness / experience of commissioning service and business planning

Communication and relationship skills

• Excellent communication skills (verbal and written). Leadership style which promotes collaboration and open two-way communication. Ability to work effectively as part of a team Capacity to work with colleagues across all disciplines and at every level within the organization
• Approachable, reliable, decisive, tactful, respectful and supportive
• Demonstrate awareness of the ability to work at a strategic level. To be effective in high level decision making Demonstrates an ability to network across local, regional and national forums
• Ability to travel to all sites within the East Midlands Haemoglobinopathy Network
• Demonstrates an ability to network across local, regional and national forums
• Ability to travel to all sites within the East Midlands Haemoglobinopathy Network
• Shows evidence of service improvement

Analytical and Judgement skills

• Demonstrates problem solving approach
• Ability to prioritise and implement new ways of working
• Demonstrates understanding of efficient and effective use of resources
• Evidence of pro-active involvement in the development of nurses / nursing practice
• Demonstrates involvement in contributing or leading development of protocols, policies and guidelines
• Demonstrates evidence of effective communication of sensitive and complex issues, both verbal and written

Skills

• Evidence of managing/ leading change
• Ability to travel between sites across the network
• Ability to work flexibly to meet the service needs
• Satisfactory attendance record, reliable and punctual
• Committed to continual personal and professional development

Planning and organisation skills

• Evidence of management development and leadership development
• Track record of delivering high standards of care
• Ongoing personal and professional development
• Shows evidence of service improvement

Equality and Diversity

• Able to demonstrate a commitment to and understanding of the importance of treating all individuals with dignity and respect appropriate to their individual needs.
• All staff are expected to engage in compassionate and inclusive leadership in the provision of highquality care and interactions with others.

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

University Hospitals of Leicester NHS Trust