Regional Lynch Syndrome Expert Network Pathway Coordinator

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Regional Lynch Syndrome Expert Network Pathway Coordinator

The closing date is 08 October 2025

The appointed Network Pathway Coordinator will liaise between mainstreaming services in cancer MDTs and specialist services to ensure that all mainstreamed LS diagnoses are managed consistently. The co-ordinator will participate in internal audit and research and provide support:

• Local cancer MDTs via Lynch champions within MDTs
• Mainstreaming pathways
• Family history services
• Primary care clinicians
• North Thames cancer alliances

The role is suitable for an individual with good IT skills who is passionate about improving services for this previously under-identified group. The post holder would provide regional level co-ordination for the network and support the embedding of transformative Lynch testing pathways through the colorectal and endometrial cancer MDTs within the North Thames region. Although beneficial, no prior knowledge of genomics is required for this role and all appropriate induction, training and ongoing support will be provided.

Main duties of the job

Monitor and support development of nationally agreed network key performance indicators, namely;

• Mainstreaming
• Number cancer MDTs in region: X/Y
• Support available for training yes/no
• MDTs: Frequency and numbers referred
• Specialist clinics

You will establish the new North Thames Lynch Syndrome regional services register and the associated services that this will allow. You may contribute to changes to the way this strategy is developed related to your experience of setting up the register.

You will implement changes when appropriate. This will involve planning and organisation of activities and or programmes which might require the formulation and adjustment of plans for the Lynch syndrome register and expert network. This will include reinforcement of links between cancer services and the Genomic laboratory Hub.

You will liaise with MDT Coordinators, Lynch syndrome champions, and cancer alliances across the North Thames region to support care pathways for patients. The Lynch Syndrome expert network pathway coordinator will support the establishment and running of the North Thames Lynch Syndrome Register and activities of the expert network.

About us

London North West University Healthcare NHS Trust (LNWH) cares for the people of Brent, Ealing, Harrow and beyond.

Our team of more than 8,200 clinical and support staff serve a diverse population of almost one million people.

• Northwick Park Hospital: home to one of the busiest emergency departments (A&E) in the country. The hospital provides a full range of services including the country's top-rated hyper-acute stroke unit and one of only three hyper-acute rehabilitation units in the UK
• St Mark's Hospital: an internationally renowned specialist centre for bowel disease
• Ealing Hospital: a busy district general hospital providing a range of clinical services, as well as 24/7 emergency department and urgent care centre, and specialist care at Meadow House Hospice
• Central Middlesex Hospital: our planned care site, hosting a range of surgical and outpatient services and collocated with an urgent care centre.

We are a university teaching NHS trust, in recognition of the important role we play in training clinicians of the future and bringing the benefits of research to the public.

Job responsibilities

For full role duties and responsibilities please see the attached Job Description and Person Specification

Person Specification Education/qualifications

• Educated to degree level
• IT qualification, e.g. NSCL computer driving licence or equivalent
• An HNC/SVQIII in Secretarial Studies/Business Administration or equivalent experience

Knowledge and experience

• To have a good knowledge of national cancer waiting time targets
• Minimum of 3 years' experience of complex and changing environment (health sector preferable)
• Excellent knowledge and experience of computer packages, including Word, Excel, Access, and PowerPoint, are also required, especially confident in using email and the internet
• Database experience
• Knowledge of hospital clinical and administrative procedures and practices, both routine and non-routine
• Knowledge and experience of service improvement tools and techniques
• Evidence of report writing and presenting skills
• Skilled in the use of Hospital Systems (HIS, RIS & ORSOS, Somerset cancer registry)
• Experience communicating with patients
• Experience in PPI

Skills, abilities and attributes

• Evidence of report writing and presenting skills
• Excellent interpersonal skills and flexible working practice
• Excellent written and verbal communication skills
• Ability to work autonomously and set priorities and be confident in decision making
• Excellent organisational skills and attention to detail
• Advanced keyboard skills with accurate data entry
• Ability to work as part of a team, across professional boundaries and use own initiative
• The skills to have flexibility and confidence to work independently, unsupervised and on own initiative in departments and clinics across the North Thames LS Network hospital sites
• Ability to conduct own projects
• The skills to ensure the suitability and practicality of new computerised systems, evaluate them at the management's discretion and check whether these meet the needs of collation and collection of minimum datasets
• Ability to critically analyse data
• Ability to carry out audit & research
• Sound analytical skills
• Good organisational skills and be an excellent communicator with the ability to liaise with various specialist teams, clinical coders, medical records, staff, pathologists, and radiologists, across the North Thames
• Willing to champion collaborative working in designing and delivering change
• Appreciation of the sensitivity of highly confidential issues, both clinical and organisational
• Excellent problem-solving skills
• The ability to accurately retrieve data from electronic and paper sources and validate against other sources
• Strong leadership, negotiation and influencing skills with the ability to motivate and engage individuals and teams
• Experience in using databases and specialist software e.g. FileMaker, Progeny and PhenoTips
• Able to co-ordinate own projects

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Employer name

London North West University Healthcare NHS Trust