Policy and Public Affairs Manager

Join an amazing charity that makes a difference for the 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.

We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.

This is a terrific opportunity to lead Muscular Dystrophy UK s public affairs strategy, driving meaningful change for people living with muscle wasting conditions across the UK. You will be responsible for shaping and delivering our political engagement work, ensuring our voice is heard by all four governments.

In parallel, you will lead our social inclusion policy agenda, initially focusing on improving financial security for people with muscle wasting conditions, with scope to expand into broader inclusion-related policy areas over time.

You ll build strong relationships with politicians, civil servants, voluntary sector organisations, and other key stakeholders to grow our influence and impact.

Working collaboratively across departments including Policy and Campaigns, Research, Services and Support, Communications, Fundraising, and our devolved nations leads - you ll help deliver key strategic objectives. Reporting to the Director of Policy and Campaigns, and line managing the Policy and Public Affairs Officer, you ll play a vital role in driving change and improving lives.

About us:

Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions. We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 110,000 children and adults in the UK.

We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won t stop until we achieve it.

Benefits:

We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We also offer a range of benefits including pension, life assurance, cycle scheme, health cash plan, financial wellbeing and an employee assistance programme.

Location: Head Office, London, SE1 (with flexibility for homeworking with regular travel to Westminster)

Closing date: Sunday 2nd November October

Interview dates Tuesday 11th and Wednesday 12th November

Please download the job description to see full role responsibilities